You Can Change Your Doctor

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Doctor

You can change your doctor! I am not trying to be oppositional and I don’t have a problem with medical doctors in general. I have been lucky enough to receive the care of severalwonderful medical professionals and might not even be here without their help. I have even written in my Jar the Ground blog about a doctor who I feel blessed to have caring for me. I have great respect for people in all healthcare professionals. But I have also encountered some real second-rate doctors. And I know of people who have experienced the same thing. The problem, believe it or not, is NOT the bad doctors. The problem lies within ourselves and the beliefs that our society breeds within us from a very young age. We are taught that people with MDs and PhDs are the pinnacle of perfection. We are told to listen to them because they know best. We are taught not to question these highly educated and trained individuals. Though opinions are changing. People are starting to question doctor’s motives and the quality of care they provide.

This post comes as a result of three bad incidents, one of them mine and the other two experiences of friends. Each story serves to expose and explain three distinct problems that some doctors have. There are many GREAT doctors out there, but there are also ones

that are flawed and show one or more of these symptoms described here. The flaws as I see them are:

  • An inability of a doctor to recognize that they might not have the knowledge or skills to help a patient and take action on that realization by providing a referral to a medical professional who can better serve the patient.
  • An obvious lack of empathy for the patient resulting in an awful bedside manner and sometimes unthinkable treatment of the patient.
  • Rank incompetence either thru stupidity, lack of proper training, or disinterest in medicine (Hard to believe, but I actually know a doctor who once told me he got into medicine for the money, only for the money. He is a shockingly bad doctor.)

I have a friend who has been seeing a clinical psychologist for certain difficulties she has been having. Meanwhile, she recently went to a local testing center and discovered that she has ADHD. Upon learning of this her therapist told her he would be happy to work with her. But over the coming weeks it became clear he had no training or expertise of any kind with ADHD. But he kept insisting she “explain to him what she had learned” in all her reading to “make sure she understood the issues.” After two months of this my friend decided that her therapist was using her to learn about something he was too lazy to research on his own and he was just trying not to lose her as a patient. When she confronted him on her final visit, he seemed to have no idea that he was doing her a disservice and that he should have just admitted to not understanding or have experience treating that particular disorder.

My second story involves the worst case of deplorable bedside manner I have ever heard of. I have a friend who has cancer. She has been to stage 4 and back and is in remission. But her oncologist was not forth coming about details like life expectancy in the face of the illness. Finally my friend asked to meet the doctor specifically to discuss life expectancy details. The doctor sent her an email saying there was no need to meet in person. The doctor then (in the email) stated that life expectancy was 5 years, 10 at the outside. There was no “sorry”, no attempt to comfort, no offer for a personal visit. My friend was crushed and felt extremely alone in the face of such an impersonal communication.

My third story involves myself. About 8 months ago I fell. This fall hurt a lot and I felt a crunch in my mid back. I have spinal issues. These are well documented in my medical records and whenever I have any neck or back injury I am supposed to have an X-ray and possibly an MRI to ensure I have not caused severe damage. I called my neurosurgeon and he was out. His nurse confirmed that I needed to come in for an X-ray. She could not get the order in and my neurosurgeon was in surgery. She told me to contact my primary care physician immediately to arrange a spinal X-ray. I contacted my primary care family doctor and explained the situation to the nurse. The primary care physician did not respond to my message and so I went in the next day to the neurosurgeon’s office and he made sure I had the X-rays right then and there. At the end of that day I was finally contacted by the nurse of my primary care physician and he had denied my request to see him and get an X-ray ASAP. He claimed it was not urgent or necessary.

I fired my primary care physician. If he had taken 10 seconds to look at my chart he would have been able to see that I should be seen immediately. He just could not be bothered. I have since change physicians and am very happy with the service.

I admit that I saw the signs over a year before. A sense from this doctor that patients (or at least me) were over reacting and did not need his urgent attention. He also could not sympathize with my chronic pain and often implied that it was some how my fault.

These three stories, exemplify the different types of poor medical care that people can encounter with bad doctors. I believe that we all have to be vigilant and question what our doctors do and say, as well as how they say it. I wish it was not true, but there is a shortage of medical professionals and the standards for selection at various levels seem to be slipping. The point is that there are still plenty of great doctors out there, but you need to be your own advocate for proper and sympathetic care. So, when you feel you are not getting good care or you feel uncomfortable with your doctor, change doctors.

Feel free to tell your story of either great or poor care at the hands of medical professionals or the American medical system.

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Relief of Pain with Heat Patches

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Direct warmth has been shown to be extremely effective in relief of pain especially muscle soreness, tightness, and spasming. I have used the hot towels and electric warming pads for treatment of pain, but recently discovered a couple over the counter patch products that I find work very well. These heat patches last longer and stay in place with more comfort than your typical hot wrap or electric warming pad that is used for relief of pain. In addition, they do not require a power source to activate or keep them warm. I use these for treatment of pain at least once a week.

Pain Relief From Warming PatchesThe first is a very thin and sticky patch that uses capsaicin, the active ingredient in chili peppers. This provides a sustained and direct warmth to the skin and increases circulation in the area under the patch. These last for about 7 hours and can be purchased at most pharmacies over the counter. They cost about $1.50 each. When I have  muscle spasms that involve micro twitches of muscles in my back and side rib area, I find these patches can alleviate the symptoms in about 20 – 30 minutes and maintain relief for 6 – 7 hours. I do not need to take a muscle relaxant or pain killers if the patch works. It provides a warming sensation on the skin that is different from a patch or hot towel. The best way to describe the effect is that the patch indirectly “heats” up the area by increasing blood flow to the surface and then to deeper levels of tissue. One problem is that if you have sensitive skin these may cause some itchiness. Also, they will feel very hot if you have one on your back and you sit down in a hot car seat. In the beginning you need to try them out for a short period to see if you experience too much burning, itchiness, or rash.

The second product is a clever derivative of those chemical warmers that skiers and winter outdoors types use to stave off numb fingers and toes. These are composed of a powdery chemical in a cloth-like pouch. The pouch is sealed in an air-tight plastic package. Once you open the plastic the chemical powder (which is in an air permeable cloth that keeps the powder off the user) is exposed to the air and as a result of this the powder gives off heat from 8 to 12 hours.

The patch version is just the powder distributed in thin pockets on a patch with sticky areas allowing it to stay where you put it (on your neck or lower back, for instance.) The resulting warmth is much like a hot towel or electric heating pad and lasts about 7 to 8 hours. If I have tight muscles that get sore I find I can stop the spasming process early by using these patches. I find if I get the patch on soon enough, I do not have to take extra medication or a muscle relaxant most of the time.

Above is a box of links to some of the products I use. You may want to try them in a single pack before buying in bulk. If you can find them at a drug store on sale and your state sales tax is not high, you can get them for about the same or less than Amazon.com Best of luck in your search for relief of pain.

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Pain Control Using a Pain Graph

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Here is a pain management technique that anyone can use in their pain control efforts to get a better picture of when their discomfort is worst, what causes it and how long their medications are working. This pain graph is easy to make because it uses the 1-10 rating that your doctor or nurse will often ask you. Below is a pain scale used commonly in hospitals and clinics around the country.
0 means you feel no pain and 10 means you have the mst excruciating pain imaginable.

Pain Scale

Record your level of discomfort at a specific interval. By doing this you can eventually (after about three to five days) have enough information to chart the changes in your level of soreness and link it  to time of day, activities, and medication dosage. This will in turn allow you and your doctor to make more informed and accurate medical decisions regarding possible causes of your pain. This can increase the effectiveness of  your treatment regimens. Below is an example of a pain graph that has been marked up to be as informative as possible. This graph was hand drawn using lined paper that can be found at any office supply store. You can record your discomfort level on any time interval you want; I used 1 day (a 24 hour period) for this one. But you could also track how much you hurt by part of the day (morning, afternoon, night). Whatever works for you. Talk to your doctor about this if you are unsure.

Pain Graph

As you can probably see from the image above, working in the kitchen seems to create an increase in soreness. Also, in this case the patient appears to have reached equilibrium. In other words she has managed to come to a choice regarding how much pain and how much medication is acceptable. This is the goal of this exercise. It can be seen by how fairly constant the levels of discomfort and doses of medication are in the right half of the graph. This type of analysis is not necessary for you to do. Your doctor should be able to look at your pain graph and draw conclusions for you and recommend changes to your routine and medication regimen.

Below is an example of a data display created in a spreadsheet on a computer. This can make it easier for your doctor to read the graph and even see the actual data points. In this situation two things are evident. Someone noted that too much exercise causes more soreness despite high levels of medication. Also, unlike the hand drawn graph, the patient who’s aches are depicted by this chart probably needs more time to achieve their optimal  pain control of between tolerable pain and minimal drug/effects.

Pain Graph from Spreadsheet


I have successfully used this pain graph technique to come to  decisions regarding the amount of medication I can take to achieve acceptable pain control. I have also been able to identify activities that either cause more pain or reduce pain (allowing me to reduce my medication doses.)

Feel free to comment on this or contact me privately for more information about this technique. Please note that I am NOT a Medical Doctor, but I have experienced chronic pain for several years and used this technique to help myself. In addition I have a PhD in Psychology with a focus in research (data collection and analysis.)


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Insomnia Treatment

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Chronic Insomnia Treatment

Insomnia

Like many people with chronic pain, I suffer from chronic insomnia. It is mostly managed with medication, but when I have pain flare up in the middle of the night it can daily wake me up. After that, even if I take pain medication prescription or over the counter, I have trouble getting back to sleep. It is as if my brain and body think that it is time to get up. For people with chronic pain this is a frequent complaint, but I talk about a chronic insomnia treatment that is effective for me. Insomnia can be caused by pain that interrupts sleep and even by the very medications a person is using to manage their pain. If you suffer from spinal related pain there are other things you can do to relieve chronic insomnia caused by this pain while lying down.

For me the best solution is to get up and do something outside of the bed room area. Otherwise I find that I just lay there trying to get to sleep or dozing and waking up dozens of times an hour (not exactly restful.) My theory as to why this works for me is that I have to get away from the bed and “reset.” I will sometimes drink something warm (without caffeine) and this will relax muscles. Or I will read something lite, like a local news paper or look for a human interest story in a magazine. I may eat a lite snack if I am hungry. But, I try to stay away from work or deep, technical literature. Anything that will get me thinking too hard will make it more difficult to get back to sleep.

I allow myself this time away from the bed for about 30 minutes. Then (after any pain relief regimen I feel I may need to reduce pain) I hit the hay again as if I was just going to sleep for the night. For me, this works about 75% of the time. And I feel better for having done something about the problem, rather than just lying in bed staring at the ceiling for three hours worring about how tired I will be in the morning.

Please leave comments and suggestions. If you have something that works, share it with other readers. This is a simple idea. I am sure there are more out there I have not tried.

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Why This Blog?

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Chronic pain is something that an estimated one in ten Americans will suffer from at some time in their lives. For many of us the search for chronic pain relief is a life-long battle. Chronic pain is debilitating physically, emotionally, and psychologically. Being almost constantly in pain can change who you are. It can make you feel like there is someone else living in your body. For many people, in the search for chronic pain relief the treatments for the symptoms can just make things worse. There are drugs that lessen the pain, but can leave a person incapable of cognitive function.

As a person who suffers from chronic pain, I hope that this blog can be of help to others who also live with pain every day. I explore alternative treatments for pain as well as ways to manage the psychological effects of constant pain. I will review products I and others have used, that I think can help my readers. I will share with you my own struggle to maintain the quality of life that I want.

I also find that chronic pain is often misunderstood , even by many in the medical profession. I know people who have been turned away by doctors who suspected them of just trying to get narcotics or looking for a way out of work. Unfortunately chronic pain is very real and there are people without this burden who just don’t know what to make of it. On the other hand it is hard to describe to another person what it is like to walk around hurting all day. Or the impact of waking up several times a night because it hurts so much you can’t stay asleep (despite sleeping medications and supplements.)

I hope that this blog can help others who live with chronic pain and give them a place to share their experiences and trade helpful tips on living with this.

Thanks,

Michael

 

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